Quotation
In the name of God
Today, as I glance at the traversed path, I thank the Almighty God whose wisdom gave me and my hard-working companions the opportunity to accomplish the duty of relieving this agony of patients and easing this heavy burden shouldered by their families. We are to wipe away the tearful eyes of their loved ones.
All praise and thanks to whom drenched a sip from the sea of mercy to me and others during these years. A taste of being blessed by our creator by quenching a pain of mankind.
Through the hardships, I am deeply honored to provide support, education, prevention, treatment and the familiarization of special disease in a manner to bring the comfort and medical supply for patients and families, therefore by raising the level of patient supports and publicizing prevention methods, the society is conducted in an accurate direction to reduce the spreading of such disease and its harmful effects on society in a greater secure fashion.
The support of compassionate and knowledgeable social leaders, especially Ayatollah Hashemi Rafsanjani, as a founder in this regard, both during and after his flourishing presidency time, was it not simple to reach such a triumphant attainment. The assistance of the country's officials and the companionships of each of the honest and loyal individuals, to date, concluded the name of this foundation shining with honorable records on the back ground of social righteousness.
Although evidence of improvements is observed in Thalassemia, Hemophilia, dialysis and Kidney transplant patients but lots of steps are to be taken in favor of those who are involved in scarce situations such as cancer and MS patients. We will for the good of god fulfil this given task.
I will carry this ambition from cradle of instituting the foundation to the grave of rooting out rare and special disease. Till the happy days of witnessing otherwise helpless distressed patients.
With the divine help of whom helps the haplessness
Fatemeh Hashemi Bahrmani
I was asked to write a description about the evolution of the charity Foundation of special Diseases and the main point of view and policies it chosen.
To begin, the pleasure of helping patients formed in me when I was spending the fourth year of medical education in Dr. Gharib's children's section. In the harsh winter of that year, when 10 to 12 half-naked children were bed fasted in each room, every morning as I entered the hospital it occurred me, a child or two was lost the night before. This overwhelming tragedy led me to
Visit the head of the section and explain the situation. I right away claimed I was ready to pay 100 tomans to prevent this brutal homicide of innocent children, and the ward doctors should be inspired and promoted to contribute.by that, this would help to afford warm clothes and preliminary needs of the children…
Unfortunately was unceremoniously ignored by him…
A week later I took my own Volkswagen to the department, field with children's clothes delivery. It was with the help of several cloth sellers. This memorable satisfying deed is always carried with me…
With entering the field of rare and special disease and the fact that I didn’t complete this mission to aid compatriots as a doctor, not only constantly distressed me, but also the built the desire to initiate a charitable organization. That was then I got acquainted to Ms. Fatemeh Hashemi, through her prominent spouse Dr. Saeed Lahouti. Such charity organization was first suggested to be established. And this suggestion of mine reflected somehow to Mr. Hashemi, the President. In any country, the government alone is not able to resolve all the medical problems of special patients, except provided with the help of the individuals. Albeit, this will not be achieved unless through the charities. This proposal was approved and agreed and the president consented to initiate the construction.
Being at service of Ms. Fatemeh Hashemi, primary measures were taken. Such as determining the content of the constitution, founding members and dedicating one million and six hundred thousand Rials.
Members were unanimous to name this organization as the charity Foundation of Special Diseases. with the devotion of Ms. Fatemeh Hashemi who days and nights spent her youth in this regard, the comprehensive and constructive participations of Mr. Hashemi, as well as the sincere support of Mr. Seyed Hossein Marashi the head of the Presidential Office, The sustainability of the foundation has become stronger and more effective every day more and more.
Dr. Hashem Jannatpour
In the name of God
If I was to mention some important achievements in field of social services after the triumph of the Islamic Revolution of Iran, it is assured that the structure of the health care system was expanded to the establishment of interconnected health care networks throughout Iran and the establishment of universities of medical sciences and health services. Due to the critical conditions in the country and the occurrence of the imposed war, it was vital to escalate the quality and quantity of medical services. During that time, the necessity of people’s right and demands was more intensified which led people to expect the highest efficiency in treatments and methods. Therefore, the extent and number of patients in all parts of the country required adequate support and insurance organizations. The establishment of the charity Foundation of Special Diseases and its support by the highest executive officials of the country is certainly the most important events of supporting patients by medical systems as a result of best utilization of the facilities. Although there is are still a long path to reach the ideal levels, this goal can be achieved with the help of authorities and people.
Looking forward to that day, happy anniversary.
Dr. Mohammad Farhadi Langroudi
In the name of God
Health is one of the greatest gift of god, and providing it to members of the society is the basic goals of advanced and developed societies to bring the best possible status to treat patients. Despite this thriving effort, there are several diseases that cause long-term disability and various medical, social and economic difficulties for patients and families due to being unknown and unidentified and also lack of specific and chronic treatment of the disease. Of course, people with such conditions, are classified as rare and specific patients in which differentiated from normal patients and are in vital need of multidisciplinary supports. The establishment of the charity Foundation of Special Diseases, which was carried out with the unlimited support of the fourth President of the Islamic Republic of Iran, Ayatollah Hashemi Rafsanjani. Based on these humanitarian purposes, with his daughters’ efforts, and all the participants, precious proceeding were reached.
Besmellah alrahman alrahim
The efforts and processes made in Foundation of Special Diseases as one of the non-governmental pioneer leaders is a flourishing example for non-profit charity foundations. The humanitarian wills and intentions of the founder and president, Ms. Fatemeh Hashemi, are admirable. The presence of prominent official members in the Board of Executors is genuinely considered as a support for this institution. but forming a strong community with peoples association, expanding it to even the farthermost parts of the country, gaining the trust of the government and Islamic Consultative Assembly consecutively was in account of honesty professional courtesy of Ms. Hashemi And her loyal companions.
Hossein Marashi